3. Im am in stres ?! Now I wanted to start again (also due to the 8kg I accumulated in the meanwhile:( ) and I discovered that I can barely run 5K in 30 min and I generally find it very difficult to run. Im in Philly today but Im from Central NY. While I do not work out regularly, my job as a construction worker is somewhat strenuous. This is ridiculous. Thus far shes had only minor bruising (shes 6ft and has a solid build). Required fields are marked *. Im guessing that my muscles are building up again and since everything was messed up, especially on left side, maybe some scar tissue or damaged nerves are coming up. Dr. Larry, I do appreciate your insightful article very much. After the scans, ultrasounds, stress tests and TOE, I was diagnosed with BAV with no Stenosis, no Aortopathy and no evidence of Coarct and normal LV size and function. This makes the aortic valve a tricuspid valve. My heart seems to heal, so that speaks well for my future.. Willie Moses The most common type was type 1 (1 raphe with the raphe positioned between the right and left coronary sinuses (75%), while the second most common type was also type 1 . He had a mild BAV and was told that he can play with no restriction. Common symptoms include chest pain, shortness of breath, dizziness and fainting. Im paranoid to exercise too much for fear that I will do damage to the valve. Medical therapy may be useful to slow or halt the progression of aortic valve disease and aortic enlargement by reducing the blood pressure and the blood pressure across the aortic valve. Given that risk, the current American guidelines recommend screening those children with echocardiogram to identify affected children. My name became public 25 years ago this week. He isnt interested in anything else. Hey has been physically active with restrictions of no contact sports, and no isometric exercise. Moreover, there is a myriad of operations that such patients may have had, each with its on set of considerations. No information provided by Baldwin Publishing, Inc. in any article is a substitute for medical advice or treatment for any medical condition. I see in this blog that Dr. C noted: Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. which seems to suggest that he has returned successfully to the sport. Aortic valve replacement is recommended for nearly all patients with severe valve stenosis (valve opening less than 1.0 cm2), Aortic valve replacement is recommended for patients with severe valve regurgitation if there are symptoms due to the regurgitation (eg, shortness of breath with exertion) or evidence that the heart is suffering because of the regurgitation (enlargement of the left ventricle), Repair or replacement of the beginning portion of the aorta is recommended if there is enlargement of the aorta to greater than 5.0 cm. After his procedure, Arnold posted the picture above with the following statement, "Thanks to the team at Cleveland Clinic, I have a new aortic valve to go along with my new pulmonary valve from my last surgery. Holding breath during lifts valsalva). How severe are the problems? My resting HR is 60-70 BP 110-70, according to doctors have no tissue problems, never had hypertension and was told that I was born with weak threskupid valve. I would encourage you to have further discussion with your doctor(s) about EXACTLY what forms of exercise are safe. Thank you very much for your answer. He is very athletic. Barb. I have regular checks, 12 to 18 months, and until about 3 years ago was told that it was hard to tell that Id had a replacement valve, it now shows slight stiffening. I have been given no restriction to date in any physical exercise as my valve is in decent condition. Its very helpful for people with heart problems. Im a 33 yro female, diagnosed with BAV. Most patients spend about a week in the hospital after operation and then are able to go home. My problem is a perpetual fear and worry about having this diagnosis and having to someday undergo open heart surgery. My family is pressuring me to quit strenuous cycling but I am thinking that switching to longer rides at lower heart rates would not accelerate valve wear or otherwise be bad for me. 1) What kind of sports are recommend to me according to my situation? They seem very busy and its taken almost a year to get to this stage. My performance as a cyclistgiven my ageputs me in the elite category, although with the stenosis I am experiencing a definite decline in performance. To list down the names of celebrities including entertainers, musicians, politicians, TV personalities, sports figures, etc. On the bright side, there is ample evidence that, in the modern era, life-expectancy is not shortened for individuals with BAV compared to the general population. Anyway, talk to a surgeon who understands quality of life means. Have tried to get a personal trainer that specialises in all things heart related here in the UK but there don`t seem to be any around despite searching. I cant think like a nurse where hey is concerned. (Have you heard of the studies by Dr. My AVG HR on a daily basis is between 61-64 (that includes a workout where it exceeds 150 at times), I have no intentions of racing this marathon, simply crossing the FINISH line, and my heart rate will not exceed 150 I will walk when/if necessary. I had my AVR almost one year ago. Thank you for the blog that addresses the athletes point of view, and feelings. Perhaps that will provide so e reassurance. My 25 year old son was just diagnosed with BAV AR (3+). I knew none of this until a year ago. There is very little scientific evidence to guide us here. 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I had to take time off gym, when I returned I only did light weights and only walking on the 4x a wk and the same issues where still there. His exercise stress test on 8/5/16 was fine. Im a 30 yr old male, training 5 times a week rowing and strength training. In March 2019, media outlets hailed two new studies on transcatheter aortic valve replacement (TAVR) as potentially signaling the beginning of the end of open heart surgery for aortic stenosis. My son will be 16 next month. During that first month we recommend ample walking as the best form of exercise. Im a 44 year old male. Ed Helms - Actor - Undisclosed CHD. This has caused me a great deal of anxiety because I feel like I am being told to act like an old man before my time. This is the way I can help. My sinus of valsalva is at 4.8 and my BAV is functional (discrete regurgitation). I currently lift reasonably heavy weights in the 8-12 rep range, including body weight excercises such as pull ups and push ups. Thank you for nice article. I had multiple re-hospitalizations but seemed to recover. This is the only measurement that has gone down . What is a TAVR? He wasnt real worried about me and I have regurgitation (mild) and (mild) aortic root dilation.. Do u think it would be OK to lift weights and if so maybe u could give me a better understanding. Here is a link to a diagram that categorizes sports according to their dynamic and static components: http://www.athletesheart.org/wp-content/uploads/2013/12/Classification-of-Sports-300217.png. I asked her when I get my valve replaced(it will have to be replaced sometime in the future) will they repair my aneurysm and to my surprise she said no. BAV is the most prevalent congenital heart defect, but can go undetected for years - even into adulthood. (I'm a 17 year old female)After a heart echocardiogram yesterday we found out I have a bicuspid aortic valve, I originally went in to the cardiologist for extreme fatigue, constant racing heart (avg around 130bpm resting), palpitations, spells where I almost faint, feet swelling and turning purple, etc . Many people in your situation will eventually need operation for replacement of the valve or the aorta, but wed need a crystal ball to know about the future. And any valve substitute (with valve replacement) is clearly not as efficienteven if the substitute is better than a diseased valve. Here are some celebrities that experienced severe heart valve defects and had to have either heart valve replacement and heart valve repair surgery. My son is a baseball player, so that is good. That is except for the last two months hes had several illnesses ( influenza, bronchitis, URI). I am mostly a runner, 4 times a week, with 10 21 km races. The aortic root is moderately dilated (max 46mm sinus to opposite commissure but you can measure 48off axis). However, some people are born with an aortic valve with only two leaflets, known as a bicuspid aortic valve. That said I have a resting HR of ~40 (always have). A faulty aortic valve isn't something you want to have considering that it helps blood flow out of the heart and through the rest of the body. Aortic regurgitation (also called aortic insufficiency), which is a leaky valve. I had my BAV replaced in Feb. 2005 (porcine tissue) with a Dacron repair of the ascending aorta. However, I absolutely love being competitive at running, and dont want to jeopardize that either. Oh, plenty. Do you opration? I know that heart surgery can be scary.but I also know that for the vast majority of patients with these conditions, surgery goes well and the outcomes are good. I hadnt heard about the technique previously. Theres no reason to not be CPR certified.. You should discuss this possibility with your doctor(s). The doc states that basketball is a contact sport in her medical books and we would need to consult with another doctor to possibly get approval. diagnosed wid BAV AND AS WITH AR For those with moderate aortic stenosis, the guidelines suggest restricting activities. I recently also did a 24hr EKG (holter) which was fine. Website designed by Gatorworks. thanks for sharing all this interesting info. Rest pulse (70 bpm|50 bpm) Push for earlier date? Get your act together, Columbus! There is a risk of sudden death in individuals with BAV, probably related most to aortic stenosis or aortic dissection/rupture. When the aorta is enlarged in the setting of BAV, there are a couple possibilities: the valve needs to be replacedor it doesnt: Valve repair. Congenital heart issues affect approximately 40,000 people born each year in the U.S. and are one of the most common types of birth defects. The idea of somehow restricting the HR may be attractive as a means of curtailing strenuous activity. "Listen to the voice inside, the one we all so easily ignore. With aortic root 39mm. ps. While the defective valve may be easy to see, the defect also causes changes in the tissues of the aorta and the heart. There are four valves of the heart, which are divided into two categories: Atrioventricular valves: The tricuspid valve and mitral (bicuspid) valve. Ive yet to feel like Im back to my previous racing fitness that I once had. We live at 6,500 ft (elevation) so Im not sure if its affecting my blood pressure when doing normal things. As youve mentioned, sometimes it can be useful to visit a cardiologist who has an interest in athletes and their heart problems. The aortic valve is between the left lower heart chamber and the body's main artery, called the aorta. However, many people will develop complications from their BAV and may need surgery in their lifetimeeither to repair or replace the aortic valve, the thoracic aorta or both. Thoracic aortic aneurysm, an abnormal bulge in the part of the aorta located in the . The incidence of normally functioning bicuspid aortic valves is 0.6% to 0.9%.5 . My son is 12 years old. So far, none of the people that had the operation suffered any dissection. I suspect (and hope) you will say that the latest recommendations say no restrictions for someone like me but I havent seen yoga specifically mentioned. Me, i`m nearly 43, male and have BAV. In the 2.5 years from surgery, I returned back to riding within the first 3 months and later back to longer, decent training pace rides and racing but feel like I have lost my top end mojo. Any guidelines? I am also in grey zone waiting for surgery. We have got two completely different opinions from our cardiologists: Last few weeks Im getting chest pain on left side (very rarely on right side) while running and doing push ups. I guess my marathon training is officially over, but i hope that i still keep doing some sport and i dont mean bowling, no offense for who practice it ;). Dr Creswell, Your doctors will be in the best position to offer advice because they will be most familiar with your case. Best to continue to work towards identifying cause(s) and getting any needed treatment. Replacement of the aortic valve with either a cryopreserved human homograft (the aortic valve from a human cadaver) or with the patients own pulmonary valve results in the least obstruction to blood flow. Does the BAV with aortic dilatation and small leakage prevent the blood to flow less efficiently? From your standpoint (and your sons), it will be important to have that dialog to sort out whats safe. My personal approach to endurance athletes in this situation would be to offer operation if the patient wanted to continue to participate in endurance sports (after operation) and was willing to assume the risks of operation. My Dr. gave me the all clear to go back to my exercise routines. ), Your email address will not be published. Thank you very much for writing such a thorough and well informed article. (Or do I just need to train even harder??). Athletes with mechanical or bioprosthetic heart valves may participate in low and moderate intensity sports, Athletes who are taking blood-thinning medications should avoid sports where bodily injury, with potentially life-threatening bleeding, might occur. If I ever need surgery to replace my root , I understand that there is an element of complexity for such surgery, but after surgery, is life expectancy for individuals assumed to be shortened at all ? Perhaps meeting with a heart surgeon now, even if operation is not yet needed, might provide a forum for discussion about the options for surgery, the technical issues, and recovery. I am a 23 year old male, have BAV with mild AR. Historically, a heart murmur was the most common reason affected individuals were identified. Over time, there will be some patients who develop problems with the prosthetic heart valve or enlargement of some portion of the aorta (that hasnt already been replaced) that requires operation. Does the (unreplaced) aorta enlarge over time? At issue are the potential long-term effects of repeated episodes of high heart rate and high blood pressure that accompany intense exercise. Many patients with surgery for BAV, even if it involves aortic root replacement, lead rather normal lives afterwards. For me, its about gender equality. I would like nothing more than to have this repaired so I can return to my lifestyle, I cant understand why I cant have it fixed as it is my choice to have surgery. But, three heart valve surgeries! First, Id encourage you to follow your doctors advice. The Jeopardy! Thank you for your time. Great to hear that youre doing cross country running. Health eCooking is a registered trademark of Baldwin Publishing, Inc. Cook eKitchen is a designated trademark of Baldwin Publishing, Inc. Any duplication or distribution of the information contained herein without the express approval of Baldwin Publishing, Inc. is strictly prohibited. My cardiologist has told me that, based on how my heart sounds, he doesnt think hell ever have to operate on me. Bethesda Conference reports), even though there is no certain link between sports and the aorta enlargement. 1. You can see my post above, from 26th of april. My exercise is limited to 30 minutes of moderate carido, with no weights. Perhaps the best course of action might be to start off very conservative with exercise, as you are doing, with periodic assessment of the aortic valve and aorta with echo and CT. You might then gradually increase the activity and monitor for any bad signs with the periodic echos and CTs. I will keep you posted. Apparently I also have a mildly enlarged IVC as well as mildly enlarged left and right atria. My questions are As I mentioned in previous comment my recovery is going great. with an efficiency of 69%, I have an appointment with a specilaist next week and am just wanting some, even if vague, answers. I am a competitive cyclist, neither the Cardio or my Doctor said I should not be racing bikes anymore, does that sound reasonable to you, my doc did say to monitor the aortic root size yearly. To me, you know your own body and what you can manage whilst straining as little as possible. The average lifespan for a cow valve or pig valve is about 10 to 15 years, according to the Cleveland Clinic. Very often, follow-up CT scans and echocardiograms are needed every 6-12 months to keep track. To me, cardiologists are not sports people and air on being absolutely over cautious. I have recently found out that I have aortic regurgitation will soon be needing surgery. Thanks so much for all this info! I was concerned about his cough last weekend so I was assessing his lungs with my stethoscope when I heard a very pronounced diastolic murmur at his 3rd ICS. I am 31 years old and had my BAV repaired at The Cleveland Clinic in 1999 when I was 15. Danny. Advertisement. I would like to thank you very much for providing me with your thoughts. I dont have any ayptoms. A bicuspid aortic valve is a congenital condition, meaning that people are born with two rather than the normal three cusps on their aortic valve. He has stenosis and moderate regurgitation. I cant wait to be back, completely rested with my heart recharged, my passion for the work ahead purposeful and my joy at lifes pleasures high," the statement continued. Dr. Larry, thank you very much for your blog! I wouldnt be happy just running I want to be the best that I can be at it. Like you, I have been frustrated by the lack of experience and information that the cardiology community has for folks like us, although it is encouraging to read everyones posts here and see that we are not alone. Barbara Walters - Aortic Valve Replacement. But like a lot of women, I thought that heart disease was an old white guys disease," the former talk show, 56, host tells PEOPLE. This have affected my son psychologically since he loves playing soccer what should I do. Your situation is complicated.and it wont be possible to give a complete answer here without additional information. The increased stroke volume and cardiac output may cause . I was only diagnosed with BAV after a routine examination and only because my company has increased in size above a threshold at which all employees are supposed to be subjected to this examination (weird law in Belgium). Diagnosed last year while looking at something else. I think we would expect less enlargement over time with stopping strenuous exercise. I mean, when competing, my average heart rate is close to 159 and my max HR is around 170. Normal LV diastolic function. Im wondering if you can advise me. My cardiologist tells me that I need to be monitored yearly and that I should exercise without limitation (for cardio) I have symptoms however that include chest pain and shortness of breath and palpitations. The valve may also become stiff due to calcium deposits on the leaflets over time.
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